The CE provider will describe and discuss, as appropriate:

1. a. 

   Dates of relevant diagnostic procedures such as biopsy and genetic testing;

2. b. 

   Results of relevant diagnostic procedures;

3. c. 

   Treatment modalities, dates of treatments, and responses to treatments;

4. d. 

   Frequency, severity, and duration of skin lesion exacerbations;

5. e. 

   Effects on age-appropriate activity, especially social behavior, because of disfigurement; and

6. f. 

   If the claimant uses a lower extremity assistive device, note whether the assistive device was prescribed, how frequently it is used, the date it was prescribed, and the medical source who prescribed it.

The CE provider will describe and discuss, as appropriate:

1. a. 

   Location, size, and appearance of skin lesion(s) and contractures, associated symptoms such as pain or tenderness, and extent of the body affected (e.g., one or both extremities);

2. b. 

   Joint function including range of motion of the affected joint(s); and

3. c. 

   If at least one extremity is affected (including involvement of the perineum or inguinal region affecting lower extremity functioning), describe ability to:

   1. 1. 

      Perform age-appropriate gross (e.g., reaching, lifting, carrying, handling, and gripping) and fine (e.g., picking, pinching, manipulating, and fingering) movements;

   2. 2. 

      Stand up from a seated position; and

   3. 3. 

      Maintain an upright position while standing or walking.

4. d. 

   Provide a description of the claimant’s gait. If the claimant uses a lower extremity assistive device, describe:

   1. 1. 

      Claimant’s gait with and without use of the device; and

   2. 2. 

      The device and how it is used by the claimant, the medical need for the device, the medical impairment the device is needed for, and the examination findings that support the medical need for the assistive device; and

5. e. 

   Optional with consent of the claimant/guardian: a digital photograph to document the severity of the skin lesion(s).